About this network

Welcome to the international Netherton Network. This website is about Netherton Syndrome, a rare disease that affects the skin, hair and the immune system.  Netherton Syndrome is related to Ichthyosis. This website is also about colaboration between patients and professionals.

Having a skin disease can truly get ‘under your skin’. It affects every aspect of your life. Your skin is what you represent to the world, it’s what people see first. Netherton affects your hair, your face, your eye lashes, your hands…your whole body. Knowing more about Netherton can really make a difference.  Knowing other people with the same kind of problems can be of help.

The Netherton Network is founded by Professor Suzanne Pasmans, pedeatric dermatologist and Karin Veldman, patient expert with Netherton Syndrome. They want to build a worldwide network of patients and professionals, to come to a high standard care for people with Netherton Syndrome and to support their family and relatives.

You can read more about Netherton by using the menu. There is information for patients and their family, but we also profide information for professionals.

You can get in touch with us by using the contact-button in the menu. We will respond by e-mail.

You can support us by using the donate button. You will be directed to www.ichthyosisnetwerken.nl.

Wil jij een van onze acties steunen?

Laatste nieuws

Program THINC 2

November 18 15.00 Introduction   Care4Netherton is the project to improve the care for people with Netherton syndrome, by defining outcome measures to evaluate care and therapy and by optimizing…