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      • Netherton Syndrome, a general introduction.
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The patient journey

A patient journey tells about the stages in life and the things patients and their parents are facing. Taking care of somebody with Netherton syndrome is also a journey for healthcare professionals.

In this video Saskia and her daughter talk about living with Netherton syndrome.

Our patient journey tells about the patients needs, but also about the needs of parents and siblings.

Patient_Journey_Netherton_Syndrom_V3 (1)

Contact

Vereniging voor Ichthyosis Netwerken
Kennemerland 98
9405 LL Assen

The Netherlands

T: +31 650453453

Mail: info@nethertonnetwerk.com

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