Welcome to Netherton Network, part of the Vereniging voor Ichthyosis Netwerken.
This foundation was established as an initiative from Netherton Syndrome patients in The Netherlands. In The Netherlands we all visit the Netherton Expertise Center in Rotterdam. The patient association Vereniging voor Ichthyosis Netwerken collects donations for people with the skin condition Ichthyosis. In The Netherlands it is called an ‘ANBI foundation’, a foundation for the benefit of public welfare.
The patient assosioation was raised to unite patients and to support them when needed.
You can donate by using the donate button on the front page, in the main menu. It will lead you to the website of Vereniging voor Ichthyosis Netwerken